And We Are Off…

…and running that is.  Wow, so much to do to prepare to blog these days… My last one, over a decade ago, was pretty self explanatory, these days … well, I’ve been lost in a sea of options for so long I’d nearly given up writing the actual blog, but, I’m back in the saddle.  I’m supposed to tell you what my purpose is.  Honestly, I’m not sure yet.  I’m sick with a chronic illness and writing that feels like a confession, because I tried to hide it from social media for a long time. I craft, and oh am I ever NOT a natural, but I try my very best to do a little something everyday, mainly because I feel like it’s calming for my brain.  And since I’m not really good at being sick and/or crafting, it could really be described as adulting my way through both of them.  So that’s my story.

I’d like to share the experiences I’ve had with nurses, doctors and other health care professionals (HCP), some humorous, some a bit shocking, some… I’ll let you decide.  I’m going to get you up to speed in my next post with the HCPs and then I’ll share as I go.  I don’t have any friends or family that are HCPs so I cannot say, one way or another, if they are wonderful or not.  They save lives, that’s noble. They are great at reading lab results, x-rays, and other diagnostic tools and letting you know if you can be treated or cured.  But there’s a disconnect somewhere, especially with the illness squatting in my body, because there is no cure, no proven treatment. I know, for a fact, that there are HCPs out there attempting to treat this illness, but in my approximately 26 HCPs I haven’t met ONE, not one, who fully understood or was fully compassionate to this illness.

I’ll close by saying this.  I’m here to be honest, like brutally honest, not in poor taste, but not holding back.  And I ramble a little, so my apologies in advance.

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