As someone whose body seems to see a side-effect-list and react with, “I’ll see your side effects and raise you an additional few” with any and all supplements, vitamins, and medications, you can understand when the doctor (we’ll call him Dr. H) was insisting on an IV iron infusion, because it would make me feel “much, much better”, why I was skeptical. Don’t get me wrong, I’ve nothing against taking iron when your body needs it, which mine does. My skepticism wasn’t solely based on side effects, it also stemmed from the two other health care providers who told me numerous times not to take iron as my body would probably adversely react. Dr. H was not okay with my request to try a little liquid iron and see what happens, nope, he wanted to infuse it into my body so I could go home and deal with whatever mayhem could potentially ensue. Forgive me doc if I go home and ponder this one for a few and I’ll try not to take into consideration that your office can potentially mark up in-office infusions by up to 300%… There’s no way you could be considering your markup over my health and condition…is there?
Yes, I’m growing increasingly anemic and no, they have no idea why. Dr. H says “I’m bleeding somewhere internally” and I cannot help but think…maybe, or maybe that’s what MECFS does, it stops your body from effectively absorbing nutrients (according to the last few autopsies on MECFS patients). My appointments with Dr. H lead to more referrals, more appointments, more tests, which I’m thankful he’s proactive but it’s exhausting. My therapist and I were talking about my disability rejection last week and I told her I just don’t have it in me anymore. I can’t fight for disability on my own and deal with all these appointments. Each experience taking a little bit more out of me. I don’t bounce back like I once did. But I knew as the words left my mouth that yes, I will be fighting once again for disability…I think this will be round six, and yes, I will attend all these medical appointments with all these different specialists, none of which seem to be on the same page. I have to wonder though, if all this stress is in part leading to my continual decline in health.
I mentioned above I came home to ponder the best way to get some additional iron into my body. After a myriad of emotions, stemming from frustration (why can’t doctors be on the same page), to sadness (what is wrong with my body), and then landing at determination (time to adult!) I contacted the homeopath I’d seen a couple years ago. She graciously and generously, after looking over my labs, steered me in the direction of a reputable liquid iron called Trace Minerals Ionic Iron and a cell salt called Ferrum Phos. 6X #4. The cell salt arrived first so I started it right away. The directions said take four tablets 3x/day. I started with one 2x/day. And guess what…my left side started tingling, hand, foot, face, neck, and of course this wasn’t a listed side effect. It scared me enough to stop the supplement, but I’ll try it again in a few days because maybe that was a fluke, I’m hoping so anyway. The liquid iron arrives today. Wish me luck for no side effects, unless they are something wonderful like peppiness. 😉 So, for now I’ve obviously chosen to not IV infuse iron, fingers and toes crossed for success with the above supplements and that Dr. H will continue to monitor my labs since I’m not using his meds.
Below are a few more of my little doodle watercolors. Wouldn’t it be cool if raw honey could cure all that ails you? I may or may not have a little organic raw honey issue. 😁Hoping your day is being kind to you 🌸 and thank you so much for stopping by for a read! If you’ve had an iron infusion with or without side effects and you feel like sharing, I’m wondering, did you feel much, much better?