Today is one of those days where my mind is foggy, my eyes are blurry, and the words seem off in the distance. I should be flat in bed, I know that, but instead I’m sitting in bed, propped up with pillows, staring at the blinking cursor. It’s like when you open the fridge door waiting for that delicious meal to magically appear. You wait, patiently I might add, and yet nothing. This isn’t the best state to be in given that I have two doctor’s appointments this week. The first is with a doctor who told me the reason I have side effects is because I’m telling myself I’m going to. Ummm. No. I get where he’s coming from, my reactions are odd, they are, but they are also real. I’m not certain, but just like many other MECFS and POTS patients it’s probably MCAS (mast cell activation syndrome). I don’t have the energy right now to explain what MCAS is but if you’re curious check it out. Anyway, he keeps trying to force an infusion on me that I know would send my body into a worse state than it’s in (I do take a very low dose of the same thing and deal with the consistent side effects at home), so he may fire me this time around…we shall see. And the next appointment is for an annual exam; this should tell you how much I loath going to the Dr now, I’m not even bothered by this one. Pre-illness it was a big UGH, now it’s like meh, I’ve had worse.
Not much new this week in my ‘neck of the woods’ beside my incredibly wonky heartrate. It has a new trick where sometimes it likes to drop very low-for-me, when it used to jump high. I’m trying to not worry about that and just appreciate each day as it comes. Despite this year being rough out of the gate, there is still so much to appreciate. On a side note: Do you follow Humans of New York on social media? Wow, his posts regularly put everything smack dab into perspective. So, in a nutshell that’s my blog for today…a little bit about absolutely nothing, my apologies to you for that, but keeping my promise to myself of blogging on Tuesdays regardless of the content.
Thank you for stopping by, it’s back to flat in bed for me. A few more doodles as I follow along with the World Watercolor daily prompts on Instagram. Hoping today is best as can be for you and oh yeah, I meant to ask…if you have MCAS what type of Dr diagnosed you? Until next week🌸