Foggy Day, Brain Foggy That Is

Today is one of those days where my mind is foggy, my eyes are blurry, and the words seem off in the distance. I should be flat in bed, I know that, but instead I’m sitting in bed, propped up with pillows, staring at the blinking cursor. It’s like when you open the fridge door waiting for that delicious meal to magically appear. You wait, patiently I might add, and yet nothing. This isn’t the best state to be in given that I have two doctor’s appointments this week. The first is with a doctor who told me the reason I have side effects is because I’m telling myself I’m going to. Ummm. No. I get where he’s coming from, my reactions are odd, they are, but they are also real. I’m not certain, but just like many other MECFS and POTS patients it’s probably MCAS (mast cell activation syndrome). I don’t have the energy right now to explain what MCAS is but if you’re curious check it out. Anyway, he keeps trying to force an infusion on me that I know would send my body into a worse state than it’s in (I do take a very low dose of the same thing and deal with the consistent side effects at home), so he may fire me this time around…we shall see. And the next appointment is for an annual exam; this should tell you how much I loath going to the Dr now, I’m not even bothered by this one. Pre-illness it was a big UGH, now it’s like meh, I’ve had worse.

Not much new this week in my ‘neck of the woods’ beside my incredibly wonky heartrate. It has a new trick where sometimes it likes to drop very low-for-me, when it used to jump high. I’m trying to not worry about that and just appreciate each day as it comes. Despite this year being rough out of the gate, there is still so much to appreciate. On a side note: Do you follow Humans of New York on social media? Wow, his posts regularly put everything smack dab into perspective. So, in a nutshell that’s my blog for today…a little bit about absolutely nothing, my apologies to you for that, but keeping my promise to myself of blogging on Tuesdays regardless of the content.

Thank you for stopping by, it’s back to flat in bed for me. A few more doodles as I follow along with the World Watercolor daily prompts on Instagram. Hoping today is best as can be for you and oh yeah, I meant to ask…if you have MCAS what type of Dr diagnosed you? Until next week🌸

 

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11 thoughts on “Foggy Day, Brain Foggy That Is

  1. Love your watercolors! So sorry you are having a rough time. It’s so hard navigating the appointments, battling over what your body can handle versus what the Doctors say will work for you. I’ve always said, the hardest part of being sick is getting good care! Hope you have a break in the symptoms soon giving a bit of relief. Thinking of you!

    Liked by 1 person

  2. Foggy brain days, I know those all too well. It’s exhausting being exhausted, and the more you try to push to do things the more difficult it seems to get, like trudging through mud. I really do hope things can pick up a tad and be a little easier soon. The doctor that told you you’re having side effects because you tell yourself you’re going to sounds like a total moron. I do understand the point as some issues are psychosomatic, but it totally belittles patients and doesn’t encourage us to trust ourselves or listen to our bodies at all.

    I’ve not come across Humans of New York before, will check it out. I’m curious!

    Yes, stay in bed, rest, all the ‘stuff’ that needs to be done can wait and be done another time. Cute paintings, you’ve really done the birdies so well (sweet little red Mohawks too!) xxxx

    Liked by 1 person

    1. Hoping you enjoy Humans of New York, have a feeling you will!

      So for a chuckle I’ll share what happened after this post. I closed my computer, rested for a bit, and then panicked that I’d lost my post by closing my computer because I forgot I already posted it 🙃😁 Ah yes, sharp as a tack!😉 I’ve learned to laugh those things off as I’m not in harms way but it really is such a huge difference from who I used to be.

      Doctors appointment actually went okay. I’ve had things like reactive airway disease and allergies my whole life. My body is very finicky and now it’s ramped that up. You wouldn’t believe it but essential oils cause me to react as well as vitamin C! It’s crazy. And I never thought either of those things would, like the thought never crossed my mind, so when the reactions came along I was in shock. I can see where it seems unbelievable and yet, it’s my current reality. So when he said I’m willing them on I was thinking you have got to be kidding me, the thought that I would react never crossed my mind 🤦🏻‍♀️ But that’s enough of that!

      Hoping you’re getting on okay these days. Spring comes with mixed blessings. It’s beautiful outside but we can’t do as much as we’d like, such a delicate balance. Hoping today is kind to you🌸

      Liked by 1 person

      1. Hmm I have noticed that I can’t stand some essential oils. Others don’t trigger me. If I may ask: What kind of reaction did you have to vitamin C?
        I am currently trying a low oxalate diet to try and manage IC which flared recently after I started ‘eating healthier again.’ And i keep reading about the dangers of vitamin C supplements for people with IC, that’s why I’m curious as to what kind of reaction you had.
        Blessings to you and I hope your day is going as well as it can. Love all your watercolors especially the ‘broken crayons still color’!! ❤️

        Liked by 1 person

      2. I’d not heard of a low oxalate diet, interesting. I try to avoid citrus and tomatoes for my IC, but the rest of my diet is so clean (no dairy, no gluten, no soy, as little sugar as possible) that it seems okay. I miss grapefruits! 😊 Hoping the diet brings you some relief.

        Vitamin C made me feel like I had been poisoned, which I get with flares, but it was worse. Kind of flu like symptoms, which I regularly have but so much worse. I felt like I was dying (low heart rate, low temp, increased fatigue, increased dizziness, chills, nausea, shallow breathing and everything hurt, including my tummy). I know that sounds dramatic but it’s what happened. I stopped the C and went back to baseline. I didn’t notice any IC differences with C.

        It’s a beautiful sunny day here 😊 Hoping your day is well can be too!🌻

        Liked by 1 person

  3. Wow, yes, those are serious reactions to vitamin C. I also have IC issues, and need to avoid citrus and have read about not taking supplements, etc. with added vitamin C so there must be some strange connection somewhere.
    We got dumped with snow last week so it’s barely above freezing today, but at least the sun is shining!!
    Thanks for the response. Blessings to you friend.

    Liked by 1 person

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