A quick little catch up from me. I’m hovering near baseline. It’s a new baseline and is significantly lower than where it was even last December, but it seems to be where I’m at right now. I’m thankful it’s not even lower and that’s all the emotion I’m willing to put toward it. Honestly the loss of my furkiddo in January sent my physical health into a spiral and I’m trying to pull my way back up. It’s interesting how, not only physical exertion, but mental exertion too, can throw this illness into a tailspin. I read soon after we lost him that it can harder to lose a pet than a parent. As unbelievable as it sounds, I’ve experienced a lot of truth to that. As a chronically ill housebound person I spent every day with him. He was my buddy, my protector, my best friend. I’m trying to allow myself space to grieve and process. I can watch cute doggie videos now without tears so I’m heading in the right direction. Do I randomly just miss him so much my heart feels like it’s broken? Yes. Does it come out of nowhere? Yes. True love is dangerous territory. But am I aware that I will move through this eventually and get to a place where I will forever hold him in my heart with fond memories and not instant tears? Also, yes. So that’s what I’m up to, missing my buddy, still trudging through doctor’s appointments, and for the month of May I was
overdoing my part to try to spread MECFS Awareness. Attempting to spread daily awareness wiped me out, kicked my pain levels up to unprecedented notches, and had me waving the white flag, so I eventually ‘called it’ for my health. Not a lot to report otherwise, but before I go I just had to share the good news with you below!
First great news, Dr. Ron Davis, PhD, Stanford professor of biochemistry and of genetics, seems to have found a biomarker for MECFS. It still needs more testing but so far is showing 100% accuracy. If you’d like to read more about that, check it out!
And if that’s not exciting enough, The Myalgic Encephalomyelitis Action Network posted, “Wow! Amazing news coming out of Congress this week! On May 23rd, by unanimous consent, the United States Senate PASSED bipartisan Resolution, S. Res. 225 “Supporting the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day”. Also, this week the House introduced an identical, bipartisan resolution, Resolution 399.” The people who fought for this, many with MECFS, pushed very hard for this forward momentum and I just couldn’t be prouder of them! More about this awesome news here.
So that’s about all I have to chit chat about right now, folks. I’m feeling like next week I’ll have more to say. Three-day weekends (where everyone is home for three days) absolutely wipe me out so I’m trying not to use every once of energy I have here at the keyboard. With that, I’m off to find some smiles in a funny video I’ve been saving up for a day just like today. Hoping today brings you unexpected smiles. 🌼