MECFS Struggle of the Day – Adulting

Welcome back!

What I intended on doing today (anyone else automatically hear ‘the road to hell is paved with good intentions’ in a sing-songy voice when they hear the word intended? Just me? 😉) was to post an award response to a recent blog nomination. However, after a good bit of time on the phone with the health insurance company (I know, fun), trying to figure out just where in the middle of ‘he said, she said’ my wheelchair prescription is being held up, I’m totally tuckered out. If you’re a regular around here, you know I have a wheelchair, but what I don’t talk about is how much it hurts my neck. So, I’m trying to get one that’s maybe fitted to me. I have no idea how it works, but eventually I’m hoping to have less pain in my neck from using the chair to go to things, like doctors’ appointments.

Just in case you think I’m being a wimp, this isn’t like an ouch pain, it’s like a nerve ending, pressure behind the eyes and in the head in general, brain zap pain. If you’ve been through this and have figured out how to fix it, I’d love to hear how! I do have a memory foam seat cushion I sit on, and it does help, but not enough. And in full disclosure this is a pain that I get from sitting incorrectly, trying to lift anything, or reach for things. It’s a pain I live with pretty regularly but the wheelchair sends it through the roof. I’ll let you know, if I’m able to get a new chair, and how or if it helps, just in case you too are having the same issue.

Last week I had a lovely birthday and now post exertional malaise is having its way with me. PEM was not invited to my birthday, and yet it just sauntered in like it owned the place…how rude! 😉 It’ll pass. For now, I’m trying to be gentle with myself, and still adult, and that my friends is the MECFS struggle of the day. With that I must go and conserve what energy is left for today. Thank you for stopping in! I appreciate it!! Next week, I’m catching up with blog awards, which I’ve been meaning to do since June, but I really pinky swear mean it this time!!

Hoping your day is as kind to you as possible. 🌸

9 thoughts on “MECFS Struggle of the Day – Adulting

  1. Mishka, I had to chuckle a little when you asked if anyone else heard “the road to hell is paved with good intentions.” I say that all the time when I say, “I meant to do…..” I’m sorry your wheelchair is causing so much neck pain. As someone who has a lot of pain in my neck, I completely understand how it affects everything; not just your neck. I hope you’re able to get a new, more neck-friendly chair soon. As always, I loved your artwork, especially your bunch of lavender. You’re so talented!

    Liked by 1 person

  2. A better suited wheelchair sounds like a very good idea as you could do without the extra pain in your neck. That said, dealing with the insurance company sounds like a pain in the ass!
    Definitely don’t think you’re being a ‘wimp’ at all! Even poor pillows can cause enough pain for people to moan about (ie. me) as my old one kept trapping a nerve that messed up my neck and shoulders. So I can only imagine what it’s been like for you in the wheelchair.
    HAPPY (belated) BIRTHDAY! We’re very close on birthdays, my fellow Leo lovely!
    I really do hope things get sorted with the wheelchair issue asap so you can try out another option – I’ll keep my fingers crossed it helps, too!
    Love the beautiful paintings as always, especially the delicate detail you’re putting into them. Very pretty!
    Please do try to get some rest over the weekend and be gentle with yourself. Sending lots of hugs your way  ♥ ♥ ♥ ♥
    Caz xxxx

    Liked by 1 person

    1. Thank you for the birthday wishes! It was a very nice day. Hoping yours was too! 🌸

      New transport chair is being delivered tomorrow. Yay 😊 I don’t have the energy for an actual wheelchair so this one, just like my last one, lets me be hauled around. It feels weird calling it a transport chair though. Someday, when I’m ‘rich and famous’ 😉, hopefully I’ll get a motorized one.

      Hoping you’ve had a nice weekend. I’m flaring 😐 I dropped and shattered a glass on Thursday, twice, and had to clean them up best as possible to protect kitty paws and the cleaning sent me straight into a flare. It’s a glamorous life we lead. 🌸

      Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.