Truth be told, I’m flaring, pretty badly. Not sure of the exact cause, thinking it may be a culmination of too many things over the past month or so. I know it started when they were painting the outsides of where I live. I wasn’t getting enough sleep as they started early with the generator, conveniently parked outside my bedroom window. They are long gone now, but the ramifications have clearly settled in with post exertional malaise. My heart rate is lower than it’s been since I started pacing with a monitor, and I’m feeling downright awful in too many other ways to list. So I’m not going to put any more of my energy here today. Hopefully whatever is going on will have started to make a departure by next week. I do happen to have a check up with my PCP tomorrow so hopefully I’ll not end up back in ER, like last time when I was feeling like this and happened to have a checkup on the calendar. A few doodles below. The lighthouse was from when I started painting a few years ago. I haven’t been able to paint in five days and I miss it. Hoping to tackle this migraine/neck pain enough to clear my vision enough to be able to get something on paper today. Wishing you a day filled with kindness, and if you’re struggling too please remember, this too shall pass… 🌸
Hoping you recover soon!
LikeLiked by 1 person
Thank you 💙
LikeLike
Hugs. Hopefully this flare passes without an ER trip.
LikeLiked by 1 person
Thank you💙 ER = Yet another team of medical professionals who hasn’t been educated on mecfs…no thanks I’m good. GP brought up an EKG today and I was like nope, been down that road. Don’t need another lexapro prescription 🙄 for POTs.
LikeLiked by 1 person
Love the pictures there pretty 🙂 hope you feel better soon I know all to well of the migraine pain hugs to you 🤗🤗
LikeLiked by 1 person
Thank you 💙 I’m sorry you can relate 🌸
LikeLiked by 1 person
You’re most welcome ❤️ it’s ok 🌼
LikeLiked by 1 person
I’m so sorry you’re doing it so tough right now, Mishka. I’m surprised you even managed this post, so take a little break from the blogging world and I hope you the check up goes okay tomorrow, preferably without an ER excursion. I really hope this flare settles soon, get some rest & know we’re thinking of you ♥
Caz xxxx
LikeLiked by 1 person
Thank you, Caz💙 No ER today. Thankful for that 🌸
LikeLiked by 1 person
Sorry to hear you’re flaring. I hope it passes soon without the need for an ER visit!
Gentle hugs.
LikeLiked by 1 person
Thank you 💙 GP brought up an EKG today and I was like nope. Not going to the ER for an mecfs flare, which exacerbates the POTs, again. Hoping you and Fletch (love that name, reminds me of the movie) are well. 🌸
LikeLike
Sorry to hear this, gentle hugs. Being exposed to the paint and exhaust fumes must have triggered it. My husband ran the riding lawnmower in the garage (and he had the door open) and I nearly choked from the fumes and was headachey for a bit. Meanwhile he was like ‘what fumes?’ 🤪 Currently I am also going through some histamine flaring (which is a new thing on my radar), it’s very ‘allergy’ with pollens outside where I live right now. Which sucks but I am glad in a way as I actually think it is going to help me long term to have now figured out another layer as to why my body is doing what it is doing sometimes (and flares from histamine exposures is another piece of that puzzle). Benadryl was the only thing that knocked out my week-long migraine type of headache and cleared up the neck pain too–which surprised me. And it is one of the few ‘drugs’ I do tolerate. Blessings to you for healing and I love your doodles this week ❤️
LikeLiked by 1 person
It’s really something how sensitive the human body can become to all things it perceives as threats. There’s got to be a reason. I can’t even tolerate vitamin c (sends me into bad flare). It’s baffling to me but I know there are probably answers out there. Good you can tolerate Benadryl! Learning to navigate it all is quite the undertaking but it sounds like you’re doing an awesome job! 🌸
LikeLiked by 1 person
Yup — there has to be (A reason!). I think you’ve mentioned the vitamin C thing before!!! Same– I need to avoid supplemental vitamin C.
Not sure if I’ve mentioned this prior (Sorry if I have; brain fog!). Too much supplemental vitamin C (IV form, in particular) metabolizes into oxalate toxins in the body. While citrate (as in lemon/lime juice — calcium/magnesium citrate) is good for the kidneys and for busting up kidney stones, straight up vitamin C (ascorbic acid) can CAUSE kidney stones — there are pub med articles about it (I just spent some time on Pubmed looking at vitamin C–yes, I lead a boring life, LOL, and just love to research medical ‘stuff’, haha). People with sensitive bladders and bodies can also flare from anything ‘citrate’ though, so we can be left unable to use the usual remedies others rely on, sigh. Have a blessed day ❤️❤️
LikeLiked by 1 person
It’s all so much, it feels overwhelmingly so much of the time. I feel it could easily turn into a huge board with diagrams and arrows 😁 I just don’t have the mental energy to go down the rabbit hole anymore, which is frustrating because I do desperately want to feel better!! Hoping today is good for you 🌸
LikeLiked by 1 person
I do feel like Alice in wonderland a LOT, sigh. Take care friend!
LikeLiked by 1 person
I love your Lighthouse painting! I hope you’re back to your better ‘norm’ soon Mishka.
Sending a gentle hug,
Jennifer
LikeLiked by 1 person
Thank you! Hoping all is best as can be for you! 🌸
LikeLiked by 1 person
I’m sorry to hear you’ve been having a flare up. How rude to park the generator so close! I hope you find some ease from these symptoms and find your way back to ‘normal’ soon. Gentle hugs.
LikeLiked by 1 person
I’m jealous you’re in winter. I want to be in winter! It’s hot here and yucky 😁 Soon enough it’ll lift. My heart rate has been oddly low? Normally it’s oddly high. This flare has been a doozy but I’m still here rambling on and on about nothing, so things are okay. 😁 Congrats on your approval!! So awesome! 😎👏
LikeLike