Much like the rest of us in the chronic illness community, I use social media to stay abreast of the latest and greatest in medical advances. Thankfully there are some awesome advocates out there, who share their knowledge, not only for free, but also in layman’s terms. I count this as a blessing, and sometimes wonder how my life would be without this information flowing freely at my fingertips, certainly something to be thankful for. Recently I came across the below MECFS image on Facebook (Image Credit: InterAction Magazine by Action For M.E – http://www.actionforme.org.uk) that felt share worthy, so I thought I’d share it with you all here.
This type of advocacy, to know that a researcher is spending his time on twitter, reaching out, stepping in and stepping up, it makes me feel like all is right in the world. We have some AMAZING people on our team, shouting from the rooftops, spending countless hours researching this puzzle of an illness. While I’m still not thankful for this illness, I’m so, so thankful for all the people who are working tirelessly to figure it out. If you’re wondering why that’s a big deal? We are still faced with rampant disbelief, not only from friends and family, but also within the medical community. Things are slowly changing though, as you can see above. We’re getting closer and closer, and to think that in the future millions of us might be treated and/or cured…the thought makes me teary.
And on that note, because I like to leave you on high note…I just have to share this video Giant Jumping Spider Reaction by Brandon Farris, which made me laugh today. 😊 It’s PG, it’s funny, he’s hilarious….check it out! (Trigger warning: If you have an intense fear of spiders don’t watch it.)
Thank you stopping in today, short and sweet. A few more doodles. One of them is to spread awareness as October is dysautonomia awareness month. “Postural orthostatic tachycardia syndrome (POTS) [one of my illnesses since MECFS] is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.” ~ Dysautonomia International
Hoping this week treats you kindly as we all shift into a new season.🌼