Y’all…WRITERS BLOCK. 👀 Not sure if it’s because it’s finally beautiful outside and I desperately wish I was at the beach 😎, or maybe Spring Fever is creeping in, but the brain fog is level 10. I do have a funny video from Instagram to share with those of you who are veteran chronic illness patients, but it has two cursies so you’ve been warned. (The cursies are only written on the screen (not out loud) and it’s only funny if you have your volume on.) It’s from one of my favorite chronic illness content creators.
I guess since nothing else is coming to mind I’ll share another update on my last update. First things first, the flare of 2020 has mostly lifted. Somewhere along the way I accepted a declined baseline and so here I am, the best of the best. After the update post two weeks ago, I went to the cardiologist once I had the strength to deal with the appointment. Funny, not funny, thing about MECFS flares, too sick to go to the Dr. She said the plunging/spiking heart rate is just POTS and I’m going to try midodrine again, she’s put in an order for the little heart monitor buddy that sticks with you for a couple weeks for the irregular rate on my BP cuff and that should come in the mail soon, and as far as my oxygen dipping down into the 70s with any exertion that’s just to be expected with chronic illness. Basically, when I flare the signals from my brain to my heart seem to really go wonky, and that’s the norm (for me). Feel free to message me or comment if you want to share you experience or advice on any of that. I welcome other people’s experiences as these diagnoses seem to be better understood by the people that have them. I hate to say this but in my personal experience nearly all of the best advice I have received hasn’t come from health care professionals. I totally get people not wanting unsolicited advice and when it comes to healthy people telling me about their aunt’s sister’s neighbor’s mushroom potion cured someone I feel the same way, HOWEVER when I know someone else has the same illness I 100% want to hear what you have to say because I know you have firsthand experience. So that’s it out of me for today.
Hoping today has been kind to you! If you’re looking for something good to watch and you have any interest on the development of human babies, there’s a six-part series on Netflix right now that’s really fascinating called Babies. A few more doodles below. Thank you for stopping in today and sorry for the pointless post. Hopefully next week I’ll actually have something to say.😬