Shifting Seats – Would you still really love to stay home all day?

It’s been interesting to watch able-bodied people learn how to cope with isolation, something us house and bedbound people have been dealing with for years. I’d be lying if I didn’t admit that it makes me want to shout from the rooftops, “See, this is how it feels to live in a cage.” I don’t though, because that would likely be frowned upon and I like to stay peaceful, so I retreat to my happy place. Self-isolating for me is nothing new, nor typically intentional, but it’s my life. Just like able-bodied people don’t like being stuck at home, I never wanted it either so I can relate to their angst. Interestingly though, now that able-bodied people have shifted over to my housebound-seat for the time being, I have shifted over another seat myself.

You might think, oh well you were already at home, what’s the difference. While the differences vary from person to person, for me there have been many, including ones that reach far beyond isolation. For one, the fallout from the pandemic means I can no longer order my food online (I’m unable to drive), none of the grocery deliverers in my area are delivering to my home at this time. Luckily my son and partner can still go to the store for me because I honestly have no idea what I’d do, but I feel guilty making them search for things only I’m able to eat so I try to keep the lists as short and as necessary as possible. On top of that, little to none of the non-dairy, gluten free, organic foods I can tolerate are available. Needless to say, my tummy has turned into a full-fledged Karen and would almost constantly like to ‘have a word with the manager’. I’m also having to push necessary doctor’s appointments way out, which hopefully won’t have any long-term repercussions. And I’m using extra energy all over the place on all kinds of things, which I don’t have to spare, lots on stress and anxiety, which leads to a worsening of my chronic illnesses. Folks, I’m exhausted on a soul level. Additionally, my son still must work; he’s around lots of people, and every day when he walks in the house, I think please don’t let this be the day he brings it home. We’re doing all the right things, washing hands, leaving shoes by the door, staying in separate rooms, wiping things down, but there’s only so much you can control. And if that’s not enough my partner is working from home, which is great, it really is, but it means someone is always here. I’m not getting the normal 40+ hours of quiet time I normally got, and everyday I can feel myself getting more and more exhausted.

So, it’s not just you able-bodied folks that have had to feel inconvenienced by the pandemic, it is us chronically ill too. You might be thinking, I never said you weren’t disrupted, nope maybe you didn’t. But did you reach out to someone you know that’s housebound and ask how you can help? Have you offered to share your food or toilet paper with them? Now that you have a glimpse into the reality of the housebound, can you carry your compassion with you going forward? Nobody ever wanted this pandemic, but you know what, nobody ever wanted to be housebound either. When this is over you will shift back over to your original seat, and hopefully so will we, but will you hold extra empathy in your heart for those of us who live this way? For those of us for whom there is no bailout, no unemployment, no answers, no cure? When we shift seats back, can we agree that you’ll never say to someone who is housebound, “I’d love to stay home all day too?”

Thank you for stopping in today! A few more doodles below (some are reposts), as well as a link to a previous post on things you can do to entertain yourself while at home. Hoping that today brings you moments of peacefulness, and even some smiles. Please take good care of not only your physical health, but your mental health too. 🌼

 

27 thoughts on “Shifting Seats – Would you still really love to stay home all day?

  1. I have been thinking about you and wondering how you are doing. I LOVE your post! Although I am not homebound, I spend a lot more time at home then most people and it is HARD and this situation is making it a lot more stressful with everyone home all the time. I am exhausted. But, to be home all the time must be SO very difficult and my heart breaks for you.
    I have also had a difficult time finding food but I have been able to purchase some through Amazon and Amazon Pantry.
    Sending you love, light and peace.

    Liked by 2 people

    1. Thank you, Wendi 🌸 It is exhausting to have everyone home all the time, and the dishes. Oh my 😳😁 It’s good you’re getting food on Amazon! Maybe it’s the things I’m choosing but nothing is available for me. I keep trying though. One of these days I just know I’ll get to enjoy vegan Mac n cheese again. 😊

      Hopefully a breakthrough will come very soon and we’ll all begin to see light at the end of this tunnel. 🌞 Take good care!
      Love and light back to you 💕

      Liked by 1 person

      1. I am so very sorry! If you purchase boxed mac and cheese, I have purchased that for my daughter from Amazon before.
        I am so very sorry that you have so much going on – I am sending up prayers for your this evening my friend. Sending you love!

        Liked by 1 person

  2. This entire experience has truly been an eye opener. I can imagine you are exhausted. Not only the stay at home schedule but risk of illness. Trying to get our normal food has been a great challenge too. Hang in there. I have been thinking about you. Sending love your way
    .

    Liked by 2 people

    1. Thank you, Lisa 🌸 for your kindness, I appreciate it. The whole experience really has been surreal, in so many ways. The food issues seem like something that we all knew could happen but are in no way prepared. 😬 Where I live there are grocery stores and restaurants seemingly in every direction, too many if you ask me, and it creates this illusion of security. …And now I will save you from my further over analyzing 😁Hoping you and your family stay safe! 💞

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  3. So true, all of this. It has been extra hard on us ill folks. I totally relate to my stomach being a “Karen” hahaha. I wish I wasn’t that picky with food but now I have to be. And cancelling online deliveries has been devastating to disabled and elderly people. I feel so much for those who have no one to do their shopping for them.

    Liked by 2 people

    1. The San Diego ME group had a notice that there were helpers available for food delivery, as well as several teens on the Nextdoor app. So there are helpers but not everyone is on the internet, or willing to reach out. 😕

      Absolutely shocking that seemingly overnight things went so off the rails. Trying to limit my Twitter exposure as that’s where I’ve seen the healthcare hero’s ❤️ from the front lines sharing their truths. It’s often more than I can handle.

      Hoping ‘Karen’ treats you well today. 😉😊Take good care ❤️

      Liked by 1 person

  4. Wow! You handled this subject with so much Grace! ( I shouldn’t be surprised because you are one classy lady) 😀 Would you mind if I shared/reblogged your post? Please remember though that this too shall pass and you ARE a warrior!

    Liked by 1 person

    1. Thank you 🌸 Please feel free to share or pass along anything here. Trying to keep it all in perspective but my lungs are not real overachievers. I once ended up with pneumonia from paint fumes (reactive airway disease). I’m in no way worried about all the other, just my weakling lungs. Hoping you and yours are doing best as possible! 🧡 Take good care 💞

      Liked by 1 person

  5. I hope after this is all over people who say rude things about wishing they, too, could stay home all day will reflect on their words. Being homebound is hard – whether it’s due to a pandemic or an illness or a disability or an injury. The cause is irrelevant.

    I have had the same difficulty finding special dietary food (non-dairy, mostly gluten-free) because the shelves are empty. I suspect a lot of the gluten-free pasta and bread is being bought by people who do not ordinarily eat gluten-free, and that is extremely frustrating. This whole situation has highlighted that Americans (and perhaps the world) still need to see ourselves as part of a community that is affected by our decisions.

    Hope you are safe and healthy. If I can do anything to help, please let me know.

    Liked by 1 person

    1. Agreed. I think the only ones who truly love this time are dogs🐶, and maybe some cats. 😊

      Todd did find vegan mac n cheese at Whole Foods today 🎉 so that’s pretty much the highlight of my week. He went to the one off Via de la valle if you’re up for an adventure. He did have to wait in line to get in the store as it’s one person in, one out.

      The loss of community in the US is disheartening. I could go on and on about that one. I fear it’s long lost though, my sons generation see the world through such a different lens.

      Thank you for your kindness. 🌸 Same goes for you! My son likes to help people so it’d never be an imposition, in other words don’t hesitate to ask. Take good care 💙 and keep those coworker posts coming, they’re the perfect level of levity 😊

      Like

  6. Yes, social isolation is not new to us chronic bunnies! It just means a little more care in the contact we do have now…

    Staying in our happy places is so nice, as I say to my hubby, my happy place is such a lovely place to reside he should join me there! Lol! 😉
    Blessings,
    Jennifer

    Like

  7. Very well said. It’s interesting, isn’t it, how things have shifted so much. I’ve found myself going through a range of motions lately, but sadly so much anger, too. I’m not an angry person and I don’t like it, but so much has bubbled to the surface lately. And the shifting seats (good way to put it) can be pretty uncomfortable. If I read about someone saying they’re ‘bored’ and moaning about how they can’t go to clubs or the cinema or a festival or whatever, I can’t help but think ‘suck it up’! However, we’re pushed into an even worse position. We’re told not to go out but we can’t get groceries delivered here either. I’m continually hearing ‘oh but there are groups and support available so people can help you out and do your shopping etc’ but I can’t find any. There’s nothing. It’s like we’re the forgotten.

    I’m really sorry you can’t get the types of food you need either, that’s just not on. Yes, most of us are going to have to compromise. We may not get the quilted silky smooth toilet roll but paper thin rough stuff will suffice (though I’ve not seen any loo roll for over a month and I’ve forgotten what it looks like on a shelf). But the options that are needed, whether gluten free or dairy free, to keep people as well as possible should absolutely be available, and now my anger rises again! Please stay as safe and as well as possible. Such a stressful, worrying time and it just compounds chronic illness all the more. Sending love your way  ♥
    Caz xx

    Liked by 1 person

    1. Oh Caz, I can see your emotions on the page ❤️ I have this saying that I use to keep things in perspective. I didn’t make it up I just use it. It’s – what if this is as good as it gets. It helps me to appreciate everything. But I’ve been so in need of assurance I keep telling myself – what if this is as bad it gets. I don’t know how else to calm my fears. I’ve heard that fear breeds anger and I could see that, but you know what else breeds anger, grief. And this whole situation is so incredibly triggering of the grief we likely all experienced when first falling ill. Not to mention that us sensitive people are finding this all to just be too overwhelming. Too much pain, too much heartache. It’s just too much. I guess what I’m trying to say is your feelings are so valid!! And I hope you’re taking a bit of time to try to escape it all here and there. Because even though it feels like the sky is falling, there’s nothing we can do to fix all of it. When I was working I was a big proponent of time blocking my work day and I’m finding that I’m needing to do that now. It helps my inner detective 😁 gather all the facts but not spend too much time on the surrounding painful information. It sounds callous but we have to put our health first.

      Hoping you’re able to find what you and your family need for sustenance, and that something gives with the tp because seriously who is buying it all?! 😳

      Sending you hugs and love and hopes that today is kind to you 💕

      Liked by 1 person

  8. I’m thankful you’ve been able to keep up on your artwork, Mishka. I work from home all the time, so this isolation hasn’t been a huge shift for me. However, my parents and my husband’s parents are still living, so I’ve been busy worrying about them staying healthy, and my mom had a total hip replacement just days before all this started. I’ve been getting their groceries by adding them to my pick-up list, separating the orders, and leaving on their doorsteps. I’ve instructed them on appropriate care of sanitizing, social distancing, etc. I am eternally grateful for the hard workers at the grocery (and all other essential businesses that are still open). I touch base with the parents almost daily, but it is difficult to not be able to go into their homes to help out or even hug them. I have faith we will overcome this dreadful virus, and I wish you peace, comfort, and love during this extra difficult for you. 💖

    Liked by 1 person

    1. I think making sure four adults stay safe is a lot! It’s a lot to worry about because unlike kids they have full access to the world. I took care of my great grandmother in the evenings (she had Alzheimer’s) through high school. It’s a lot. They’re very lucky to have you there for them! 🤍 Wishing your mom a speedy recovery!

      Essential workers really are our superhero’s right now. ❣️ My son went to the store yesterday and he said that many of the customers had masks but none of the staff. I just can’t imagine being in that position. I’m thankful food is available but I wonder if, for their protection, it should be like take out with restaurants.

      Thank you for your kindness, wishing all the same for you. 💞 I know we’ll emerge and I can only hope the world will hold onto some extra compassion on the other side of it all.

      Liked by 1 person

  9. KC

    Really good post (I miss you now that you’re not on WP * I don’t sign up for blogs cuz I hate having to go through my email all the time) and food for thought too for those of us who are normally able-bodies and always on the move. I think you should re-post or do a follow up post when (IF) things get back to “normal”.

    Like

    1. Thank you for stopping by! A follow up post would be much the same I think as my life hasn’t changed by the isolation orders, since I was already housebound. My life, and the life of so many with chronic illness, has stayed the same. Because we’re unable to be out in the world I think so many of us remain invisible, but now others are experiencing bits of what we’ve lived for years and years. The reactions so the shifts are bringing on a variety of emotions in the chronic illness community, most of them not so great. I think there’s a feeling that all these funds and exceptions were always available, despite us repeatedly being told they weren’t, but it’s taken a pandemic and limelight to shift the tides. No telling what the future holds but I sincerely hope that people will hold more compassion for people who need accommodations going forward. Wishing you good health!

      Liked by 1 person

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