An excellent explanation of PEM written by Whitney Dafoe included in post.

A repost from Whitney Dafoe’s facebook post, with my short explanation below.

If you’ve happened upon this post and you are a Covid-19 LongHauler, please take a moment to read and be extra careful as your body heals. 


Whitney Dafoe, a young man who came down with severe MECFS (myalgic encephalomyelitis/chronic fatigue syndrome) in the prime of his life, has been able to post lately (a truly joyous transition); not only are his posts beautifully written, but they are thoughtful, funny, and informative. If you haven’t checked out his Facebook page I encourage you to do so. His story is his to tell, which he is sharing post-by-post on Facebook, and I don’t want to put words in his mouth, so I’ll end by saying this – his post linked below – it could be life changing for millions if only it was common knowledge. Someday we will get there, hopefully someday very soon.

The most unique, best identifying symptom of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME/CFS) is Post-Exertional Malaise.

– Whitney Dafoe

(Edit: Please click below hyperlink for Whitney’s post. Embedding isn’t something I’ve conquered properly.)

In case you are unfamiliar, Whitney’s dad, Ron Davis, is a brilliant professor in the Genome Technology Center at Stanford University, and according to what I’ve read, Ron spends nearly every waking hour working towards any and all advancements to uncover as much as possible about the illness known as MECFS. If you are interested in learning more about current research, collaborations, news, or are interested in how you can get involved please check out Open Medicine Foundation (OMF). One of OMF’s current projects involves finding similarities, or differences, between COVID-19 and MECFS.

“We are already looking for neuroinflammatory markers and nerve cell markers in ME patients, so we are attempting to see if these are also found in COVID-19 patients’ spinal fluid…”

-Jonas Bergquist, Professor of Neurochemistry at the Department of Chemistry (BMC) has started a collaboration with the neurointensive care unit at Uppsala University Hospital in order to study samples taken from COVID-19 patients.

Thank you for stopping in today. Hoping today has been kind to you. I know you could be doing anything with your time and I appreciate you chose to spend it here. A few more of my doodles below as I follow along with World Watercolor Group in celebration of World Watercolor Month.

4 thoughts on “An excellent explanation of PEM written by Whitney Dafoe included in post.

  1. This is fab, will share your post now! And interesting too to hear about the current research on covid-19 & ME/CFS, given the worrying trend for many patients to experience lingering symptoms rather similar to ME… xx

    Liked by 1 person

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