This is a quick list, the actual list would surely bore you into clicking away. 😉 Let’s get the ‘bad news’ out of the way first.
- Terrible advice for an MECFS patient. It likely led to the worsening of my condition. MECFS patients are repeatedly told by doctors, who aren’t knowledgeable with regard to the science behind the illness, that they should be exercising. This is some of the worst possible advice. The more we exercise or push ourselves, not just physically but mentally too, the more the illness progresses.
My trapped trauma was the reason I am not able to heal myself.
- In other words, it was my fault that I couldn’t free the trauma and magically cure myself. This is something I’ve seen quite a few people in the chronic illness community talk about. They too were told they needed to just work on themselves. Well I’ve got news for the people who keep sharing that philosophy. People (most anyway) have trauma, they are not all sick from it. 🙄 My nueroimmune disease doesn’t care about trauma. Children get this illness, children whose only trauma is the fact that they have this illness. Health practitioners really need to think this thought process through. It can be very toxic. It led me to feeling like a huge failure, at a time when I needed to be healing, not hating myself for not being able to heal myself.
And now for the ‘good news’.
Stay in today.
- My MECFS diagnosing doctor shared that little gem with me. At the time it made no sense why a doctor was sharing zen-like advice, but as the days turned into weeks, and the weeks turned into months (and I wasn’t getting any better) it started to sink in. The advice has been invaluable to this day for reasons I don’t entirely claim to understand. Something to do with happiness and being present … blah blah blah 😉😊What I so know for certain is that not worrying about what was or what will be has led me to a more peaceful place. Don’t get me wrong, I still worry about what was and will be, but I’ve also given myself permission to let that stuff go and be present (without guilt).
Learn how to be more self-compassionate and then do that, do it now!
- Self-compassion has been one of the biggest takeaways from being ill. It’s probably something that’s taught by one’s parents (certainly not mine, but maybe all you healthy folks out there can relate to that 😉). I have no idea if it’s something people are born with or it’s something they learned along the way, but what I do know now is how vital it is to take care of, not just your physical self, but your emotional self too. At the end of the day when all the things and people in your life fall away, your body and your health are all you have.
Thanks for stopping in today. I’d love to hear any advice, good, bad, or ugly, that you’ve received. And my apologies if this post looks odd. I’ve not been able to wrap my mind around this new formatting stuff. Hopefully you won’t be able to tell! 🙂
A few more doodles, including one with my new paints! They are so bright and beautiful!! I love them. 🙂