May 12th is Myalgic Encephalomyelitis / Chronic Fatigue Syndrome International Awareness Day – Show Your Support

May 12th is International Awareness day for the following Chronic Immunological and Neurological Diseases: Fibromyalgia, Gulf War Syndrome, Multiple Chemical Sensitivity, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). May 12th was chosen because it's Florence Nightingale's birthday. Ms. Nightingale was an English army nurse and also a pioneer in what would become the International Red Cross …

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Bittersweet Day

Whew, yesterday was an emotional roller-coaster. The causes of the roller-coaster were not mine, they came from my lifeline, social media. As is typical with MECFS, emotional experiences tire me just as much as physical ones, today I’m gum on the bottom of a shoe and tomorrow will likely find me even gummier. So, to …

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Why do you see so many doctors?

Hello there. Thanks for stopping by today. If you’re a fellow spoonie you’re very likely familiar with just how different doctor’s appointments can unfold. You probably have your favorites sorry doctor’s but we do. You’ve probably also been questioned about why you continue to see a doctor if you don’t like the way that person …

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Saying Goodbye to Your Pet Companion when Chronically Ill

According to social-media-appropriateness mentioning your pet repeatedly is frowned upon, unless the account is only for your pet, so this will be my final post about my sweet Kaiser. If you’ve been following along you know Kaiser was very sick, and if we're also connected on Instagram you know my sweet boy was taken by …

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A Look Ahead, A Look Back, and A Look At Today

Well, 2019, let’s do this! As I mentioned last week, my goals will basically be the same this year as last. Namely, continuing to do ‘bed yoga’ as my body will allow (even if that just means laying there and simply breathing with the guided audio), trying to practice mediation more regularly (this one is …

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