Open Letter to Social Security Disability Caseworker/Investigator(s)

I would like to begin with a little background. My career focus, when I was able-bodied, was legal/compliance. I spent 15 years in that field, in a variety of capacities. At one-point I provided company surveillance for employee emails. I know what it feels like to look into people’s private lives, to form opinions about …

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Let’s Talk about Creating Watercolors… in Bed

In the spirit of transparency and in an effort to not waste your time, I’m not a watercolor expert. In fact, I’ve had no art training whatsoever. However, I am experienced, after five years, in finding inexpensive ways to enrich my life, while spending my days in bed, with osteoarthritis in my hands and several …

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Making Headway

A quick little catch up from me. I’m hovering near baseline. It’s a new baseline and is significantly lower than where it was even last December, but it seems to be where I’m at right now. I’m thankful it’s not even lower and that’s all the emotion I’m willing to put toward it. Honestly the …

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Bittersweet Day

Whew, yesterday was an emotional roller-coaster. The causes of the roller-coaster were not mine, they came from my lifeline, social media. As is typical with MECFS, emotional experiences tire me just as much as physical ones, today I’m gum on the bottom of a shoe and tomorrow will likely find me even gummier. So, to …

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Foggy Day, Brain Foggy That Is

Today is one of those days where my mind is foggy, my eyes are blurry, and the words seem off in the distance. I should be flat in bed, I know that, but instead I’m sitting in bed, propped up with pillows, staring at the blinking cursor. It’s like when you open the fridge door …

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