MECFS Struggle of the Day – Adulting

Welcome back! What I intended on doing today (anyone else automatically hear 'the road to hell is paved with good intentions' in a sing-songy voice when they hear the word intended? Just me? 😉) was to post an award response to a recent blog nomination. However, after a good bit of time on the phone …

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5-Part Series: The Truth about my Life with Multiple Chronic Illnesses, Part Five

Welcome back to the final chapter in this series, the last week in July was the week I got sick five years ago, just a few days before my son’s 18th birthday. If you’re just joining in and have some time or the desire to wander through my journey here are parts One, Two, Three, …

Continue reading 5-Part Series: The Truth about my Life with Multiple Chronic Illnesses, Part Five

May 12th is Myalgic Encephalomyelitis / Chronic Fatigue Syndrome International Awareness Day – Show Your Support

May 12th is International Awareness day for the following Chronic Immunological and Neurological Diseases: Fibromyalgia, Gulf War Syndrome, Multiple Chemical Sensitivity, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). May 12th was chosen because it's Florence Nightingale's birthday. Ms. Nightingale was an English army nurse and also a pioneer in what would become the International Red Cross …

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Why do you see so many doctors?

Hello there. Thanks for stopping by today. If you’re a fellow spoonie you’re very likely familiar with just how different doctor’s appointments can unfold. You probably have your favorites sorry doctor’s but we do. You’ve probably also been questioned about why you continue to see a doctor if you don’t like the way that person …

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Focusing Passed the Flare

Making a blog post from my phone is something I have zero experience with, so I apologize if it’s wonky. Unfortunately, for me, I’m experiencing the worst flare I remember having since MECFS onset and sitting up is being reserved solely for eating. But a promise is a promise, even if it’s only to myself, …

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