Open Letter to Social Security Disability Caseworker/Investigator(s)

I would like to begin with a little background. My career focus, when I was able-bodied, was legal/compliance. I spent 15 years in that field, in a variety of capacities. At one-point I provided company surveillance for employee emails. I know what it feels like to look into people’s private lives, to form opinions about …

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Let’s Talk about Creating Watercolors… in Bed

In the spirit of transparency and in an effort to not waste your time, I’m not a watercolor expert. In fact, I’ve had no art training whatsoever. However, I am experienced, after five years, in finding inexpensive ways to enrich my life, while spending my days in bed, with osteoarthritis in my hands and several …

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Making Headway

A quick little catch up from me. I’m hovering near baseline. It’s a new baseline and is significantly lower than where it was even last December, but it seems to be where I’m at right now. I’m thankful it’s not even lower and that’s all the emotion I’m willing to put toward it. Honestly the …

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May 12th is Myalgic Encephalomyelitis / Chronic Fatigue Syndrome International Awareness Day – Show Your Support

May 12th is International Awareness day for the following Chronic Immunological and Neurological Diseases: Fibromyalgia, Gulf War Syndrome, Multiple Chemical Sensitivity, and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). May 12th was chosen because it's Florence Nightingale's birthday. Ms. Nightingale was an English army nurse and also a pioneer in what would become the International Red Cross …

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Chronic Illness: Generational Effects

At the tender age of 12 the doctor told me that my mom had only two months to live. It was news that I couldn’t fully process at that age, maybe it sent me spiraling into a state of shock. I don’t know, but luckily, my mom was tough as nails, and I didn’t have …

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