Sensationalizing Chronic Illness

The chronic illness community has been up in arms over a recent release on Netflix, title Afflicted, and rightly so. As I understand it chronically ill people were scouted out by the film makers for the film, specifically people who have chronic illnesses that aren’t currently well-understood. They were told that the film would portray …

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Smile, It’s Good For You

Between ME/CFS Awareness Day (May 12th)/Week (May 11-17)/Month(May) and Mother’s Day, this week has been an emotional doozy for many of us. Mother's Day is always a rough one for me as I lost my mom in '02. She passed of heart failure and incurable anemia but had many of the same symptoms I now …

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20 Entertaining Activities For Us Housebound And Bedridden Folk

In the beginning of your illness you may have been just trying to survive each day, while simultaneously trying to tackle as much as possible to keep life normal. Eventually you reached a point where acceptance settled in, specifically an acceptance that pacing is absolutely vital to feeling as well as possible with chronic illness, …

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Spoonie Tv Show Reviews And A Bit Of Advice Seeking

It’s the end of October in San Diego, CA; well it’s the end of October everywhere else too, so it’s not the date so much as the location that makes the following relevant. It’s 99f degrees outside today!! That is hot, hot, hot for this little corner of the world. It’s not commonplace for homes …

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