An excellent explanation of PEM written by Whitney Dafoe included in post.

A repost from Whitney Dafoe's facebook post, with my short explanation below. If you've happened upon this post and you are a Covid-19 LongHauler, please take a moment to read and be extra careful as your body heals.  Whitney Dafoe, a young man who came down with severe MECFS (myalgic encephalomyelitis/chronic fatigue syndrome) in the …

Continue reading An excellent explanation of PEM written by Whitney Dafoe included in post.

What was it?

Was it the mental preparations? Was it the list making? Was it the researching? Was it the culmination of documents over at least a months’ time? Or Was it the actual appointment? Was it handing over some of the worst ways my body has failed me in the last five years of my life to …

Continue reading What was it?

MECFS Struggle of the Day – Adulting

Welcome back! What I intended on doing today (anyone else automatically hear 'the road to hell is paved with good intentions' in a sing-songy voice when they hear the word intended? Just me? 😉) was to post an award response to a recent blog nomination. However, after a good bit of time on the phone …

Continue reading MECFS Struggle of the Day – Adulting

Fibromyalgia + Sugar = Ouch

Let’s just get that red tape out of the way… This is my personal experience. I’m a no-longer-able-to-work-due-to-chronic-illness legal/compliance person, but by no means am I a health care professional, in any way. If you or someone you know have been diagnosed with an unsolved mystery illness, like fibromyalgia (FM), you may have taken to …

Continue reading Fibromyalgia + Sugar = Ouch

Pacifist Turned Chronic Illness Warrior

There are people with chronic illness that do not like being referred to as warrior’s; I respect that point of view. In fairness, I respect most points of view that don’t in any way hurt anyone or anything. To each his own, right? According to Google’s dictionary a Warrior is a brave or experienced soldier …

Continue reading Pacifist Turned Chronic Illness Warrior